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Month: April 2017

Sarcoma Stomp

Rockin’ Wendie and Rainbow Wigs

I’ve wondered for a number of years now who Rockin’ Wendie was and I always admired Team Rockin’ Wendie’s Warriors at the annual Sarcoma Stomp. Tonight I finally…

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Sarcoma Survivor

Defining “Cured” from the Sarcoma Trenches

By guest blogger and sarcoma survivor, Julia McGrath It didn’t take me long after being diagnosed with sarcoma to come to the conclusion that cancer terminology…

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No Rare Disease Pity Party Here!

My family and friends will tell you that I’m a data dork, learn-a-holic and question queen. I guess that is a compliment? 😉 Since taking…

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