Our mission is to fund local research and expand global hope for cures that save lives. To accelerate progress in developing sarcoma cures we must also awaken social advocacy on a larger scale. It is vital that our community spread the word about how to LEARN MORE; to know exactly what sarcoma is and how to detect it, so patients and families can ACT FASTER to seek diagnoses, resulting in right treatment available earlier. That is how to truly SAVE LIVES. Please, explore these resources to help our mission grow!
Having access to education and support resources is absolutely vital to becoming the best advocate you can be. We believe no one should feel alone when navigating a diagnosis, including those with rare cancers like sarcomas.
Our Sarcoma Is Cancer luminary display honors those impacted by sarcoma diagnoses and the healthcare workers who care for them.
Soft-tissue sarcomas are more common than bone sarcomas. The 50 types of soft-tissue sarcomas differ greatly in their tissue of origin, behavior, age of occurrence, aggressiveness, method of spread, genetic alterations, and therapy sensitivities. There are over 150 subtypes of sarcomas. Sarcomas comprise less than 1% of adult cancers and approximately 15-20% of pediatric cancers. Around 12,000 people are diagnosed soft-tissue sarcomas and 3,000 diagnosed with bone sarcomas in the U.S. each year.
Endorsed by The Paula Takacs Foundation, the National Comprehensive Cancer Network® has published the NCCN Guidelines for Patients – Soft Tissue Sarcoma and NCCN Guidelines for Patients – Bone Cancer. They are updated periodically by NCCN.
Taking action quickly is critical to a positive outcome, so head to our RESOURCES section to access much more information about sarcoma education, sarcoma treatments, and family support via links to high-quality organizations and sources.Download our Sarcoma poster Download our Sarcoma poster
Explore the most comprehensive, accurate and up-to-date listing of clinical trials with your healthcare provider as they develop your treatment plan with you.Explore Clinical Trials
From top notch local and national resources, including education, treatment, and support topics, we've got you covered to be a great advocate for yourself or others.Access All Resources
In the very back of my file cabinet lies some seriously sacred territory – the many files documenting my brother’s medical history before sarcoma, records reflecting his fight against sarcoma, and his death certificate. I don’t know why I have kept these papers 7 years later, except to say that I thought they may help someone else needing research info, fighting an insurance appeal or filing for disability…or for assisting in the preventive care of Alan’s 3 children as they grow up. And then I must admit there was the emotional pain of shredding the papers that defined the most devastating chapter in my life, and deciding that it was easier on my heart to let them stay put.
I made the decision to pull out these files today in honor of Sarcoma Awareness Month, because I know in my heart that I do have an important story to tell you and a valuable lesson to impart. And what monumental thing did I learn after the loss of my brother, you ask? Awareness can potentially save your life, and the lack of it may kill you.