The My Pediatric and Adult Rare Tumor (MyPART) Network, coordinated through the National Cancer Institute (NCI) Center for Cancer Research (CCR), was established to bring together patients, their family members, healthcare providers, patient advocates, and researchers to work together to find treatments for rare cancers affecting children, adolescents, and young adults.
MyPART runs the Natural History Study of Rare Solid Tumors. This study follows people of all ages with rare solid tumors over the course of their disease to learn about how these tumors develop and to discover treatments. Participants are asked to provide a saliva sample, fill out questionnaires on their medical history and their family’s medical history, and fill out surveys about how living with a rare tumor affects aspects of their life. To learn more about the Natural History Study and how to participate, email NCICCRRareTumorClinic@mail.